About HLHS
Understanding Hypoplastic Left Heart Syndrome and why research matters.
What is HLHS?
Hypoplastic Left Heart Syndrome (HLHS) is a severe congenital heart defect in which the left side of the heart is underdeveloped. In babies with HLHS, the left ventricle, aorta, and related valves are too small or absent, making it difficult for the heart to pump oxygen-rich blood to the body.
HLHS is a lifelong condition. It requires a series of surgeries — usually three staged procedures in the first few years of life — and ongoing cardiac care. Even after surgery, children and adults with HLHS need regular monitoring by specialized heart teams.
Why Awareness and Funding Matter
Research funded by walks like the Charlotte Congenital Heart Walk helps improve surgical techniques, develop better treatments, and support families navigating life with HLHS. Every dollar raised brings hope to families like Renee's.
1 in 100
Babies are born with a congenital heart defect each year, making CHDs the most common birth defect.
Lifelong Care
Children with HLHS need specialized cardiac care from birth through adulthood.
Research Saves Lives
Funded studies lead to better surgeries, new medicines, and improved quality of life.
Families Need Support
Donations also help families with travel, lodging, and emotional support during treatment.